In IPF a key concern is that many patients who are diagnosed with the disease remain untreated. In 2016, 290 respiratory physicians from five European countries participated in an online survey about IPF treatment in patients under their care. The survey showed that, of patients with a confirmed diagnosis, 40% did not receive treatment.1
IPF is unpredictable and damage is permanent.2 Without appropriate medical intervention the opportunity to slow disease progression is lost. “Slowing disease progression and preserving lung function by reducing decline should be the primary goal for all physicians when treating individuals with IPF. For this reason, initiation of treatment at diagnosis is vital”, commented Professor Toby Maher, Royal Brompton Hospital, UK.
While a cure for IPF has not been found yet, two approved antifibrotic drugs shown to slow disease progression in IPF are recommended for the majority of patients by international guidelines.4 At the time of diagnosis, IPF patients should feel empowered to take an active approach to managing their disease by learning all they can about it, and discussing with their treating physicians what treatment options and approaches are available.
New resources released for Rare Disease Day can be found at Boehringer-Ingelheim.com.
More information on IPF for physicians can be found at inIPF. Further information for patients can be found at Life with IPF.
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Please click on the link below for ‘Notes to Editors’ and ‘References’:
https://www.boehringer-ingelheim.com/press-release/IPFwhywait
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